Just wanted to make a quick update, since it has been a while!
The surgery went great, textbook. My surgeon has been awesome. The headaches that came because of the surgery have pretty much gone away completely. He said it's normal to get them for a few months still, and I get a couple here and there, but nothing big anymore.
It's so nice to have everything done with and get all back to normal!!
I have another follow-up with the surgeon in December just to make sure everything is going okay, I'm on aspirin until then for a slight blood thinner.
I'll have another CT on my kidneys in Feb. and a head angiogram either in the spring or fall, to make sure the aneurysm is clotting as planned. That will give us a new "base" to look at, because I'll have to continue having CT's on my brain every few years to see if anymore creep up (which is, unfortunately, quite possible).
I did have a little "incident" a few weeks back.. I ended up in the ER because my heart was going a bit crazy. They hooked me up to some machines and my heart was beating over 200 bpm, while laying down in bed ha. (normal is about 65 for me). Anyway, they had a giant needle ready to shoot me up with some stuff that would stop my heart, then restart it at a normal pace, but as they were hooking me all up it finally slowed back to normal. It happened a couple more times since then (and before then actually), but nothing as crazy as that night. So I'm waiting to see the cardiologist (yay another doctor! ha), because apparently that's not normal for someone my age, etc. So we'll see what's up with that! Not sure if it's PKD related or not, possible though.
I'm so thankful to have found such awesome doctors and surgeons to take care of me, they have been amazing.
I'm also immensely grateful to all of my family and friends, neighbors and ward members, who have prayed for me, fasted, brought meals, and just shown so much love in many ways!! THANK YOU!
I'll keep updating as I find anything new.